Lab results came back today confirming Noah has TMD, and that the only genetic abnormality is Trisomy 21 (Down Syndrome). Also they confirmed the kind of cells floating around in his blood are Myleo cells which is what the doctor suspected. It is comforting to know that there is nothing else going on with his blood and bone marrow. Now we just have to wait out the transient myeloproliferative disorder, and wait for him to get better on his own.
Also, he definitely still needs the oxygen, and so far they don’t know why. They are going to do an Echo on his heart again. Pray that whatever is causing him to have trouble breathing would just go away. I tremble at the thought of them cutting my baby open.
We have been working on breastfeeding, which he has done really well 1 or 2 times per day, but otherwise is just too exhausted. If he gets the hiccups or is bothered, he just wants to cozy in and go to sleep. Tube feedings continue. He is 6 lbs now!!
I heard the comment today “he’s not going anywhere for a while, so…” Silly me, was still thinking it might be just a few more days.
I miss my boys.
Dave is still battling either really really bad allergies or a cold and will be going home for a couple days to be with our boys. I have friends coming to stay with me. There are not too many people who can drop everything and come- I am so thankful for them!
Praying for all of you! Thank you for the updates. God bless!
Wow, six pounds already! That’s great news. Remembering you always in my prayers. So happy to see pictures of Noah. Can’t wait to meet him in person. What a strong, determined boy.
We are praying! If there is anything we can do please let us know! Can’t wait to meet him! We love you guys!
We are praying for you often. Holding you close in thoughts and prayers. Love you. Aunt Connie
Too bad Dave isn’t feeling well, so thankful that you have friends who can come stay with you. I’m sure your boys miss you too:( Praying for all of you!
Yay for weight gain! Praising God for that!
We are praying… I love you.
Charity
The Andrews family is lifting you up in prayer!
Yay for breastfeeding! Praise God for his weight gain. We will pray that Noah will gain strength for nursing and for his breathing to improve.