We are not home yet.  I’ve been thinking about God’s faithfulness through (what feels like) wilderness today.  How impatient I am!  How patient He is!

First some good news:

Noah has been off oxygen much of the day!

He has been waking up to nurse, and has exclusively done so for the last 2 days.  He’s weighing in at 6lbs 1oz.

His platelets have been hovering around 20,000, and have not dropped drastically for about a week.

I just have to laugh about Noah’s fickle heart!  Cardiology now doesn’t think his heart is the cause of his (now occasional) need for oxygen.  After 4 echos, I am seriously going to laugh out loud if they think his heart is causing problems again.

There are a couple new theories on what is causing him to desaturate and need oxygen.

1.  For whatever reason his lungs are just a little less mature than your typical baby born at 35 weeks.  The plan is that he would grow out of it:)

2.  Sleep apnea (which apparently still happens while he’s awake?).  They did a little 6 hour sleep study where they looked just at his oxygen saturation.  It recorded 306 dips.  Theory is that his airways have low muscle tone, and are not staying open the way they should (waking or sleeping).  This could account for some of his need for oxygen. This particular sleep study requires a machine that just broke, and they are waiting on a part to be delivered.  Tuesday is the plan for the big sleep study if UPS comes through.  They aren’t comfortable sending him home if he’s desaturating so frequently.  So here Noah and I sit, waiting.

I found a beautiful place to soak up the sun amidst some sweet smelling crabapple trees, a big water fountain and some tulips.  2 weeks ago when we arrived there was nothing on the trees, now everything is bursting with life (including my sweet snuggly baby!).