Upon my arrival this morning, Noah’s nurse said they did the newborn hearing screening and he failed.
The doctors have said only about 10% of the babies who fail the first test are congenitally deaf and they will test again Monday. With my sister being congenitally Deaf, I wonder if the test is right. I know what to do with deafness and I can figure out Down Syndrome, but both?! My heart aches for his future.
They also did an Echo on his heart. The murmurs had closed up completely, and the enlarged ventricle is now average size!!! His need for oxygen is not heart related!!
Dave is home with the boys for a couple days. Even though I could have used him here today, I am glad he is with them!!!
All day as I have been processing this news, these verses pop into my head.
Fear not for I am with you, be not dismayed, for I am your God. I will strengthen you, I will help you. I will uphold you with my righteous right hand. Isaiah 41:10
And whatever you do, in word or deed, do everything in the name of the Lord Jesus, giving thanks to the Father through Him. Col 3:17
Praying for you all here too. Noah is so beautiful! (Er, handsome!) Our Brynn failed the newborn hearing test too – Since she passed the second test, they assumed aloud that the fluids must not have all squished out of her ears at birth… Maybe since he was a C-section that’s his case too? (Brynn wasn’t a c-section, but her delivery was pretty fast..) Like I said, we’ll be praying!!!
Been praying without ceasing for you and the family. God knows, hears, and sees your needs and Noah’s! So glad is FAITHFUL !
Courtney, you are amazing! Noah is a fortunate little boy…God chose YOU to be his mommy! He is precious…
Hi Courtney – I’m praying for you, Dave, Noah and your whole family. I pray your family would be enveloped by God’s love during this time and He would reveal himself and his purposes in new ways. I pray for strength, peace, understanding, and healing. I pray his power and glory would be revealed in mighty ways. In Jesus’ name.
Jeff Skistad
From a co-worker of mine, Annette Franz:
I will definitely pray for the Kruse family. As a parent of a child with special needs (my son Brian is 20 y/o and has Autism), please pass on my words to the family if you have a chance.
In the beginning the road is difficult and full of challenges. You will get past that. There will come a day where you can say with confidence that you are happy and thankful that God gave you the special gift. He knew you would have the strength to be a good parent for your child with special needs, that is why He chose you. Having a child with Autism has made me not only a better parent, but I am a better person for having him. For my son I was able to bring out qualities in myself that I never knew I had. Today I am grateful for the opportunity to have been chosen for the most important gift I have ever been given, a child with special needs.
Stay strong, be there for one another and accept help (sometimes that is harder than it sounds)!
Sincerely,
Annette Franz
Thinking of you, Courtney! May you feel our prayers and the Lord’s presence in a tangible way today.
I love the verse you shared. Amen. Picture of Noah is so cute!
Love u so much!
Charity
He is beautiful!! Congratulations!! We will pray for you both to be sustained and upheld by God.
Tawnda Andrews
Great verse Courtney. I’m also thinking of the beautiful hymn “Turn your eyes upon Jesus” – know which one I’m talking about? Sending love and prayers daily.
So thankful little Noah is improving and you continue to get good news along the way; especially with his heart and breathing. I’m happy to see that he is nursing and I’ll pray that he continues to get stronger with feeding. He is so precious in the pictures you’ve shared and all I can do is think about how very blessed he is that God chose you for his mother. HE certainly knows what he is doing. Sorry Dave is home and sick but glad he can spend some time with the big boys. Many prayers for you all. Lots of love to you.
Courtney thank you for sharing this with me! I have had a stretch off; I work this weekend. I have been praying for you and Noah. Even though I can only imagine the struggle you and Noah are where you need to be in Rochester. I have recited this verse frequently this year…Jeremiah 29:11 “For I know the plans I have for you ” declares the Lord ” plans to prosper you and not harm you, plans to give you a hope and a future.”
Praying for all of you!
Apparently, I said that already (computer told me that). But it’s true! I will keep praying and keeping all of you in my thoughts. : )
Hello Kruses!, I just heard the news of your exciting new addition. I am praying for you during all the difficult tests/procedures and unknowns. My beautiful neice (who is 3 now) had a start similar to Noah. She also has DS and had many complications. She has overcome many hurtles and is an incredible child who is full of life and love. She is exceeding all expectations the MDs placed on her. Praying for you all and praying he can be home soon. Krista
Our prayers and thoughts are with you all!