If you have been praying for Noah these last months, you have grown in our hearts and are family! We want you to join us for his Covenant Baptism and worship at Christ Church this Sunday at 11am. Our church meets at Word of Life Church 20013 Stoltzman Rd, Mankato.
Now here’s an update:
Yesterday was my birthday, and since I can’t eat dairy or soy for Noah’s tummy, birthday cake is not an an option. Dave saved the day with birthday sushi yesterday. He makes my heart go pit-a-pat. I had a chunk of time with mr. incredible yesterday- fantastic birthday! I am now thirty….something. If Dave is thirty-ahem, I must be thirty-ahem minus 2 or 3. The years all run together now.
We are going on day 2 at the Epilepsy Monitoring Unit at St. Mary’s. Noah has had no activity, and they want to keep him here one more day to see if this pattern of not having seizures continues. It’s bizarre being under surveillance. The nurse today said as she was watching, she was envious of my snuggly baby as her baby is 1 and not snuggly. The perk of getting to be here is plenty of snuggles!
Based on descriptions, the video, and his blood work, the Neurologist thinks this might be focal seizures caused by a small stroke. The stroke could have occurred any time when his platelets were so low, but just manifested itself in the last weeks. Noah will have an MRI tomorrow morning, and they are going to try un-sedated, well-fed, and swaddled. Typically they would use general anesthesia, but because of Noah’s oxygen requirement, it’s more risky for him to be put under. If he doesn’t cooperate, they will just scrap it, and get an MRI when he gets bigger (and under general anesthesia). It would be awesome to get that information now rather than later. Pray for a sleepy baby around 8am tomorrow!!
He is fairly miserable, but is enjoying exclusive mom and the fun mobile they set him up with.
Looking forward to washing off all the nasty glue on his head. There has to be a baptism washing analogy comparing it to washing off glue, but nobody sleeps at the hospital. Someone with a fresh mind think of something poetic and meaningful;)
“Baptism … not a removal of neural electrode glue from the scalp but an appeal to God for a good conscience through the resurrection of Jesus Christ …” – 1 Peter 3:21 😉
What a beautiful baby boy he is. Prayers for all of you that there will be answers and there can be a new normal: less hospital, more time at home.
His eyes are saying, “Miss Carol, please get me out of here!” Oh, baby, I’m so sorry. Prayers that you’ll be home soon.
Praying… Love u sister!