by Courtney Kruse | Jul 13, 2014 | Blog Posts, headline
On Weds Noah had a blood draw, and his hemoglobin had dropped to 7.2. By Friday he was so lethargic that he was desaturating, not nursing well, and his “awake time” was spent laying limp. I called Friday, and they determined he needed a transfusion. After spending much time on the phone, it just wasn’t going to work to have it done in Mankato (frustrating!). Saturday he would have a transfusion in Rochester.
Meanwhile Dave and the boys had a parade on Saturday. I was so sad to be missing it as it is an important campaign day. My sweet friend Carol gave up parade day and played valet for us. She’s the best!
After the transfusion, Noah had the most energy ever! He was hungry and busy, and I happily stayed awake with him most of the night:)
by Courtney Kruse | Jun 24, 2014 | Blog Posts, headline
In the last several weeks they have had to do extra bloodwork as we are watching Noah’s hemoglobin go down. Hemoglobin is at 7.6, platelets and immature white blood cells have stayed almost exactly the same for the last several weeks. He has had some sleepy days where he has a hard time staying awake long enough to eat.
Without realizing, I had grown accustomed to improvement, so hearing this news has been tough. “What if…” interrupts my thoughts. Can I trust God even if my baby needs to be treated for Leukemia? The answer is the same as before:
Almighty. The Almighty God who established time, and ordains all things and works all things (all things!) for His glory and my good is with us. Almighty God who had planned all and knew all, is with us through all.
Learning to trust.
by Courtney Kruse | Jun 15, 2014 | Blog Posts, headline
During our stay in Rochester, a friend of ours gifted us a newborn photography session for Noah. This the perfect gift as all of our photos from the first several weeks of his life were taken on our phones, dim and blurry.
On Noah’s 6 week birthday Liz brought arm loads of studio, and took amazing pictures right here in my living room. She gushed over the sweetness and the cuteness of my baby, and tenderly arranged him on beautiful crocheted blankets. She recorded him. Not the Down Syndrome, just Noah.
It’s the day I saw him as “Just Noah.”
https://www.facebook.com/pages/507-Photography/593204720762170?sk=info
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