quick update.
When Noah was born, his diagnoses, my c-section, and the subsequent upheaval of life, caused our time in Rochester to be incredibly emotionally exhausting. Because we knew about and planned for this surgery, we knew a positive outcome would be forthcoming, we are at peace (and exhausted).
The first two nights he did not sleep hardly at all, and finally last night he was able to rest, though he kept rolling over onto his owie and waking himself up.
Noah’s pain is now controlled, and he is overall feeling better by the hour. Today they did a CT angiogram as well as a bunch of cardio testing “right away in the morning” at 2:30, and as he is coming out of sedation, we are waiting for results. He has not been able to eat or drink anything since surgery, so you can pray his tummy would cooperate. There is no leaving the hospital until he can drink and eat. He also has thrush, which is making eating/drinking more difficult. Pooping continues to be a struggle.
When he is upset, riding the wagon in the elevator is his favorite thing. What did sick kids do before games/movies on the kindle?! It has been an extremely helpful tool to get him to calm down or distracted from hard things.
Thank you for praying, friends. It seems the worst is past. I have been reading the psalms.
For the Lord is good; his steadfast love endures forever, and his faithfulness to all generations.
Psalm 100:5
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