In the last episode, Noah was all fixed up. This is the episode in which we buzz around trying figure out his quirks to help him feel better.

The first meds they tried with him were unsuccessful. He is like a pain killer connoisseur. He samples and spits, literally as he vomits and figuratively as his body does not respond. They were trying some pretty heavy meds on him, to no effect.


People with Down Syndrome sometimes lack enzymes required to break down and use drugs. The tricky thing is that not every person is the same, and there’s not research to know which things are going to be most helpful (or not).

Last night was misery. Not much helped. They changed the plan hour by hour. He was in pain and couldn’t relax to sleep. He was crying and saying “no, no, no” most of the night.

If he were to poop and pee on his own, it would make a big difference to how he feels. Good news is he is drowsy and doesn’t care about all the wires and tubes sprouting from him too much yet. The chest tubes keep putting out fluid, so unfortunately it stays. One other line came out today, so he’s down to 4.

I keep reading in the Psalms about God’s closeness and power. The God who created all things personally cares about Noah. We know this little fix will help Noah on this earth; but we look forward to complete healing in the life to come.