Testing leads to more testing.

Last week Noah had some disappointing appointments. He failed his first hearing test after surgery, and it seems his tubes are clogged or fallen out.  Already.  His ENT wants to replace them. His oxygen saturations have been fluctuating between being great, and worse than before surgery. His doctor picked up her phone and scheduled a sleep study for Sunday night.

We survived the sleep study, and the results were good!  She said they were so good, we wouldn’t have to use oxygen!!! This is what we were waiting for, right?!  Skeptic mom here.  A few nights ago, I had to have him on almost a liter to keep his sats up.  Noah had a good night in the sleep center.  He will have a home study next week, just to rest this momma’s mind.

The study also showed some prolonged “obstructive events” that seem to be affected by the position he was sleeping in.  Maybe this explains his bad nights?

The chest x-ray was cloudy.

He had an echocardiogram today to see if his heart is involved. He has an appointment on Thurs with cardiology– a different doctor this time. (Last fall we saw a doctor who was hard of hearing (and maybe in denial).  He couldn’t hear my voice, but listened to my baby’s heart tones.  He said he didn’t need further testing, because it sounded like the holes had closed.  Nice guy, but I want someone who can hear well to listen to my son’s heart.)

Next week Monday he is scheduled for surgery for new tubes, a bronchoscopy (look at his airway), and an overnight ph test to see if there is reflux in his lungs.  So we get to do more days at St. Mary’s.

Sleep study = very little sleep for mom.

More on bated thanksgiving later.