Visited with the Neurologist yesterday, and after explaining every little thing about Noah, she really didn’t have much feedback for what this could be. Naturally the one hour EEG from Thursday didn’t show anything, as Noah didn’t shake at all during that time. He did, however, perform for the resident while she was taking the initial history! So thankful someone saw it! The Neurologist set up a 24 hour EEG next week Weds at St. Mary’s. I am so thankful they are following up with this so closely!
A 24 hour EEG is the only way to get the information they need to determine if these are seizures and whether to medicate him. 24 hours of poking owies all over my baby’s head and body, and they want him to be lying in the crib for as much time as possible so they can get a good reading. My tiny veined baby may also need some blood drawn and possibly an IV. I hate having to be brave for him.
Yesterday he had several “events” last night he had 2 within a 5 minute period. Pray they are not getting worse! (except for during the testing on Weds)
Meanwhile back at the ranch, Dave is in full campaign swing, and all of this Noah drama has been extremely disruptive. He has not had the time to get on the phone and make those important volunteer contacts. So, if you have a couple hours in the next months you can give up, he sure could use you!
2 big boys are taking turns door to door campaigning with daddy this morning. The boys have been boys; getting dirty, playing with frogs, pretending about monster truck policemen with metal brains and blazer guns that shoot green fire (Josiah). Calvin is nearly potty trained all by himself! Dry diapers in the morning for a long time I am so thankful to not be potty training through all this chaos!
I am starting school with Solomon 3 days next week.
With all the constant supervision of Noah and appointments you can imagine, the house has been a mess. When we arrived home yesterday, Solomon walked me downstairs, and Grandma with the “help” of my boys did a super cleaning job! Sheets were even washed! She’s the BEST!
Phil 4:4-7 Rejoice in the Lord always; again I will say, rejoice. 5 Let your reasonableness be known to everyone. The Lord is at hand; 6 do not be anxious about anything, but in everything by prayer and supplication with thanksgiving let your requests be made known to God.7 And the peace of God, which surpasses all understanding, will guard your hearts and your minds in Christ Jesus.
There are lots of unknowns. Will this affect his long term development? Will he have multiple, complex long term problems that just won’t resolve, ever?
Praying, and letting God’s peace guard my heart and mind.
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