Noah has been doing something that (to me) look like seizures. The pediatrician today had very little feedback for us as to what this could be, only said it doesn’t sound like the more common “infantile spasms.” He making a referral to a neurologist and is setting up an EEG. My momma heart is sad that he will have more tests, and I hate helplessly watching him tremble. They were able to coordinate extra leads during his sleep study tomorrow night which is checking on his oxygen requirement. At some point today they will call us with an appointment with a neurologist- pray it is soon! I hate, hate, hate this waiting while he continues to have these little shaking periods! Pray it doesn’t affect his development! He hasn’t been moving his right arm as much, and is preferring to look to the left:(
Yesterday Noah also had an appointment with endocrinologist- the least of his issues, and nothing to report.
It’s one more thing he has to deal with, and another doctor in our “collection,” and I just want it to go away.
Meanwhile, he is happy and growing and doesn’t seem to be troubled by any of this. Blessings.
My wonderful mother in law, Gayle, was on the phone with scheduling at the clinic, and discovered the stranger on the phone has been praying for Noah! AND she reported that there was a group in Australia praying for him!!!! Incredible. Knocked my socks off! In those times when I feel like I can’t pray, apparently Noah is being prayed over by many!
“In the same way, the Spirit helps us in our weakness. We do not know what we ought to pray for, but the Spirit himself intercedes for us through wordless groans.” Romans 8:26
Groaning with you in prayer. Please kiss Noah’s downy head for me.
Goosebumps aka Godbumps reading this. SO many prayer for sweet Noah and your whole family! Hugs,
Love,
Katie
More doctors for your stable, alas! God is with you through the flames and through the water … you are not alone. Hugs, tears, and prayers.
we pray as well…wondering/not knowing the direction is such a scary place to be…remember to look up – keep your eyes on the immovable “goal” (God) so that you will not go round in circles or wander off course (I learned that in G.S. during pursuit of hiking badge)…
Praying for you all here in Florida.
Praying. Psalm 105:4 Seek the Lord and His strength; seek His presence continually. Praying that as you wait, He would be your constant help and strength. I am so thankful that we serve an amazing God who walks with us and sees each tear.
Prayers for Noah and your entire family–he’s blessed to have such a watchful and discerning mama : )
Thinking about you!
Nicole