The last week has been rough. There has been some small amounts of blood in Noah’s diaper. On Thursday the first diaper of the morning had a big blood clot, and then subsequent diapers had more blood. Called, had an appointment, and they did a bunch of bloodwork. The bloodwork for the last 2 weeks in a row looks worse. They aren’t going to do anything about the intestinal bleeding, except watch his blood work, and transfuse when necessary. We have instructions to go to the ER if the bleeding gets worse. It breaks my heart each diaper change, knowing his body isn’t able to keep up with production of blood and not knowing why he is bleeding. We have appointments with a GI specialist and Hematology Oncology this Weds, and they have said they want to watch Noah more closely with weekly appointments. Sigh.

I waited patiently for the Lord;
he inclined to me and heard my cry.
2 He drew me up from the pit of destruction,
out of the miry bog,
and set my feet upon a rock,
making my steps secure.
3 He put a new song in my mouth,
a song of praise to our God.
Many will see and fear,
and put their trust in the Lord.

My steps are secure. He inclined to hear my prayer. He puts a song in my mouth.

There are still lots of questions, and the waiting is hard. Keep praying!

Thankfully Noah mostly seems not to notice (except when they are stabbing him). He is happy, eating well, growing, cooing and holding his head up. Seeing other older kids at the clinic in Rochester — I am so thankful Noah is going through this as a baby!